Hi. I just realized I posted our PEG experience on the other forum instead of here. But basically, what I naively thought for some reason was going to be a half day or even 5-6 hour procedure turned into a five day hospital stay. We went Monday morning to get PEG tube. Jesse was severely nauseated/vomiting upon arriving; so they gave him fluids for a good while and than went ahead and put the tube in, but by next morning, CT scan showed it had "backed itself out." So we got another surgeon to put another tube in using a different technique and so far it has stayed in. But Jesse couldn't have anything in it for 24 hours to make sure it sealed, and by then, we had decided to have a port put in while he was still in the hospital, so he was only able to get the feeding started for about 8 hours before he had to fast again to prepare for the procedure this morning. So already 5 days in the hospital, but at least we have the PEG and a port in place and hopefully we can move forward from there. I will now pray that there are no problems with infection and am fighting the feeling that if it can go wrong, it will.

Should he secure it with tape to keep it from pulling out? Especially at night? Will it hurt the inside of his stomach if he lays on it? The home health nurse is supposed to come tomorrow, so I guess she will answer these questions, but hopefully nothing will go wrong tonight. The nurses at the hospital don't seem to have a lot of information, and the booklets don't give a lot of detail either, at least about practical things.

Thanks.
Michele


Michele, caregiver to husband, Jesse, SCC diagnosed 1/5/06 unknown primary, lf neck mass >6 cm. Chemo (Cisplatin 2x; Carboplatin & Taxol 2x) & XRT radiation 39X ending 4/4/06. Rad neck dissection 8.5 hrs 4/13/06. 30 HBO treatments Fall 2006.