Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Marie-Lyne As Gary stated, you 'opened a whole can of worms' when you opened this PEG topic. I think there are only 6 of us who did it without a PEG and I'm the only one that did not have a significant weight loss, only 4 lbs. I also stubborn and had XRT and no Chemo. It only takes about 1500 calories a day to maintain my weight. How many calories a day will he need to ingest to maintain his weight? Is he stubborn enough to swallow when everything tastes like cardboard or burns his tongue?
I do hope you have researched our previous posts on this topic because there is some very good info there. Mark has several good ideas for blender recipes and Danny has a super calorie shake.
Is your husband getting chemo? From what I have read on this board, that may effect his ability to eat or drink. He could try to make it the first two weeks without a peg and see how it goes and make his decision then, but if he losing weight, he needs to get the PEG. If he can make it to the near end, there is a nasal feeding tube that could be used for a few weeks (you don't want to be seen in public with this and certainly not playing baseball).
Just go to all the old posts and READ. While I doubt your husband will make it without a peg if he is having chemo, I'd print them off and let him make initial decision. Follow the GAILMAC thread on Barry's treatment. There is a lot of good info on coping with the problems in treatment.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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