Petey.....I know that this isn't your thread, but I will respond to you....You say that IF you knew that you wouldn't have to lose your entire tongue, you'd do the rest of the treatment. Have I missed something here?? It seems to me that you have never had a proper diagnosis, nor even a suggestion of a treatment plan made by a team with expertise in this field. You are throwing away your chance for a future without even knowing what you are fighting!!!!! Get going tomorrow. Don't make phone calls. Take yourself to a medical center, and simply BEGIN.

Look at it this way: You can have a few months of hell and be dead, or you can have a few months of hell and get better and have a life and another chance. What's the worst that can happen???

At least find out what the full diagnosis is, and what the probable treatment is. You are presuming that you will lose your entire tongue. Read the posts for BOT patients. MOST of them were treated without surgery.