Wow. That's a lot for one appointment, but I'm also kind of impressed they had all those folks on hand at the same time to help out. Take notes. Make THEM take notes and hand them to you. (Worth a shot!)

My speech therapist is someone I should have started seeing a lot sooner after my treatments ... she turned out to be worth her weight in gold not just for speech and neck issues, but also as a sort of informal mental health counselor and someone who could give tips on migraine headaches and particular massage motions. (They cover a lot of issues in her office.) Just plain a really nice lady. I'm due for one final assessment, but have been awaiting my new teeth for that. Anyway ... that'll be a person you won't need right away unless your surgery is extreme, but could be someone who becomes your new best friend. smile I hope yours is as good, thorough, and kind as mine has been!

Diet person is someone to talk to after you understand your surgery. Make 'em go in order, if you didn't figure that part out already. Teeth first (especially if any chemo or radiation is in your future) and surgery are first. I'd guess the care worker and the diet person would be next up, as that's recovery stuff. And then that speech therapist, who can't do much till you heal. (Unless, as I said, it's something you start while in hospital.) Then at least you get a sort of timeline to your notes as you're going, if that helps. And gives a feel of control over some of this.

Good luck and hope the next appointment isn't so overwhelming!


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery