As I understand it the CCC tumour board does a similar group diagnosis to the panel I had here. You get ROs, MOs, ENTs, speech, diet, dentists, all looking at your scans and poking and prodding you and working out collectively what the best course of treatment is. Is that the case?

If so, after that my treatment was relatively straightforward. A tough time, but not something that required the top specialists. As long as the doctor I was seeing at the time had my file, things went ok.

At the risk of oversimplifying your situation, if I had the logistic challenges you do, I'd be looking at whatever facility is closest. Cisplatin is Cisplatin and if a hospital has a million dollar radiation machine they will have people who know how to use it. I wouldn't be unduly concerned about the handover.

You do seem to be asking the right questions, I hope you can put your mind at ease soon. Try not to stress, take it one step at a time. Radiation and chemo are tough but very doable, and you have plenty of friends here with lots of support and tips to help you through.

One more thing. Can people change their names after they register?

Alittlescared, Youngandworried and Dazedandconfused walk into a bar... smile


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.