Brian, I had asked about the biotene and was given the impression that it can only be given as a prescription. Is this true?
I noticed the other day after giving 5 bottles of boost through the peg (not all at once of course) that Moms "pep" was better the next morning. On Fri. when we saw the nutritionist, Mom was telling her she is eating. UM.. well, I've been keeping a close eye on how much she is eating and lets just say, if you consider 1/4 cup of mashed potatoes, and 1/4 cup of smashed sweet potatoes eating, then she is eating. I realize that these type of foods are the only thing she can tolerate without the major pain, however, the amounts aren't adeqate. I also noticed Mom saying she has ate other things also, which she had but it has been a week or 2 ago. I THINK she doensn't realize how small amount she REALLY is eating. I don't want to upset her and dispute this in front of others, but the nutritionist could tell by the weight loss and my expessions that Mom isn't getting the proper nutrition she needs and moved the peg feedings up to 8 boost high protein cans a day. This also insures she is getiing the water/fluid intake she needs. Can anyone that has had a peg tube tell me how long the site where it is put in hurts? A year ago when she was having a skin problem, her Dr. gave her lexapro which she is now taking again, her primary thinks this is a good idea to help the depreesion that many have mentioned here. I am afraid sometimes that my advocacy may appear too much and the last thing I want to do is have Mom feel I don't think she can handle things! I would love for her to get on this site herself but 1) she never has really like messing with the computer other than a few simple things -old school ya know, and 2) she knows I'm doing all I can to get all the knowledge we can get. I will be purchasing the book Amy suggested and your right Amy, the support I recieve through here is OUTSTANDING. I make sure I come home a day or 2 during the weekend to see my hubby, children and grandchildren. This helps keep all in balance.
dee


Caretaker of Mom with Unresectable stage IV SCCHN, T1-3,T4..No,N1,N2-3. IMRT daily treatment starting 8/24/05. Erbitux every week starting 8/10/05 and Cisplantin every 3 weeks times 3. Diagnoised 7/5/05 -passed and in peace now on 10/1/05