"OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | Hi, Brie. You sound very self aware, a quality I admire a lot. Sounds like a big biopsy you've had! I had a lichen planus lesion removed from my tongue some years ago and experienced similar pain. After the anaesthetic wore off I was in such agony that I went to an after hours clinic where it took them hours to get in top of it. My point is that it can be the nature of the beast - there must be lots of nerves there. Mine stopped hurting after a shorter time than yours and it was cancer so I don't think you can read anything into the pain.
You are a very eloquent person and somehow need to establish a line of communication with your doctor, one that might enable you to trust him. My problem with my lichen planus was that it wasn't biopsied for a couple of years or more because the oral surgeon thought it looked bog standard ... until it didn't. I had reason to be disappointed in him but at least your doc has biopsied you.I think they do so as a last resort because it IS so painful. When the pain has died down, and you feel better, maybe you can think about the matter of a second opinion. I remember looking online for a doctor who had written research papers on lichen planus and emailing him. It's a horrible condition when it becomes painful and I fully understand your frustration with it.
Hope the pain eases soon and some of the anxiety with it. I'm thinking of you and know exactly how you feel. Maureen
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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