My oral surgeon was insistent that my leukoplakia was "no big deal." In fact when I saw him in November 2011 he didn't even take a biopsy because he said he didn't want to aggravate it. Then, in September of 2012 I find myself having a partial glossectomy for full blown tongue cancer. Now, here I am in January 2013 with a recurrence and a full glossectomy in my very near future. I wish I had not been so trusting with my oral surgeon, but I regarded him as "the expert" and went with what he said. It makes me mad, but there's nothing to do about it now. I have of course left him in the dust and am getting my treatment from real doctors now. A hard lesson learned!


Male, non-smoker, very light drinker, age 56 at diag.
9/18/12 - Diag. tongue cancer, left lateral border HPV 16+
9/24/12 - Partial glossectomy w/recon. Left side neck nodes removed
11/7/12 - Begin rads (30 treat.) and Cituximab (11 treat.)
12/26/12 - Rads compl.
1/18/13 - Cituximab compl.
3/13/13 - PET clear
12/19/13 - Positive PET
1/3/14 - Biopsy confirm cancer in tongue and 1 node (stage 4)
1/16/14 - Surgery - full glossectomy and and right neck dissect