Thank you very much for your all your replies. Bare with me because I am on a high dosage of percocet after an un-sutured biopsy...I had to stick with the same Oral Surgeon because of many different set backs I won't get into. I am going at this alone. My mom is the only one I have and she lives out of state and is not in good enough health to visit by plane.
So, update thus far. I will be 35 in may. I have been suffering from lichen planus/leukoplakia and odd random sores on and off for years now, since I was in my very early 20's. It was never painful until a few years ago. I was biopsied 4 years ago and it came back negative, then it grew back over the years very extensively and fast. I just had another biopsy done and 5 days later, it was an utterly incredible relief to find out it was negative, but the report said that it needs to be viewed as suspicious and to keep a close eye with repeat biopsy if it returns, which I know it will. I ALSO find myself wondering if the specimens were tested right, put in the right dye etc. because it came back so fast, only 5 days. The pathology dept is in University of Florida and I find myself wanting to talk directly to this pathologist. I know that cancer can hide in different spots and biopsies can come back negative a lot. I keep worrying it's not a definitive answer. Like I should dig more...
The biopsy was taken on my right side of the tongue and my right side of the gums. Completely adjacent to the tongue occurrence. I also see it in random places where I had fillings and root canals. I wonder if that may be part or all of culprit. Irritation that can lead to cancer? Anyway, I believe something is irritating my tongue and cheek. That is my next step to look into. I have heard that it may be the certain mercury metal used in fillings...
Aside from all that I have a very worrisome issue. I know that you all have more important and pressing issues, but this has been really bugging me and I need to vent it off my chest. The biopsies were taken the early morning of Jan 13th and it is now 7 am Jan 19th. I went in yesterday to be checked because I am having SEVERE pain in the biopsy sights. Percocet only takes the edge off. My biopsy 4 years ago was sutured and not nearly as painful as this. i cant eat and can barely talk without a heavy dosage of pain meds. The oral surgeon said it was because It was an open wound without sutures and a big biopsy site. (The purpose was to test it and clear most off my tongue)He said some people take longer to stop feeling the pain but that it is healing nicely and then prescribed me stronger meds. This is day 6 and i am feeling this pain in my teeth and my ear. It is radiating like crazy. I feel like that's not normal. Should I trust what he says ?
Also, and i am really sorry this is so long, but I am wrapping it up now...I noticed that when i stick out my tongue, one side is higher than the other in the back and this worries me because I have heard of people saying that their ENT or oral surgeon noticed this and this led to a different biopsy and then a cancer diagnosis.
I just want this to be over already and I want to rest easy, but this pain and the raised spot all make me feel like I should go for a second opinion. I have a habit of being a hypochondriac and paranoid, so most people who know me, just brush it off as another "freak out" I say I am being proactive and it's not my fault that I have so many peculiar things that happen to my body. It is so hard to accept things when they don't feel right and to KNOW when you are just too worried or that your worry is warranted.
Again, i profusely apologize for this being so long and thank you for listening/reading. I really appreciate your kind support and advice.
Last edited by Brie79; 01-19-2014 05:10 AM.