I am very upset now, because of the fact that my oral surgeon wasn't insistent on keeping a very watchful eye. Instead he was more insistent that i was too young and it was very rare. I am scared that it's so late in the game now. 4 years ago biopsy was done, 2 yr follow up it grew back with slight pain, next two years spread more with more pain. That infuriates me because I keep on top of things but i also want to trust doctors and expect them to know their things. Thank you for your information. I am going to see the ENT.