Not sure where you are, but Blue Cross has covered much of my stuff. Copays and deductibles are a pain, but they ARE covering some. Try a better doctor. Hugs. This is a scary journey, it is okay to cry a while and let it out, and then pick yourself up and tackle the next step. One step at a time.

Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery