I had gotten a great semi permanent trach with passey Muir the day before I was d/c I arrive here they want to take out and put in the one with the disposables because they don't have the cleaning trays, my husband and promptly sat down and cleaned it with supplies we brought from the hospital this situation is surreal...I am trying to talk to anyone who will listen. Waiting for husband to arrive to call insurance company case management anyone who can help. Thank you Christine for letting me know I'm still heard.


8/2013 dx sarcoma lft mandible 10/22/2013 fibula free flap with mandiblectomy, peg,tracheotomy, 11/8/13 trach removal, 2nd mandible sx 12/13, 35 IMRT 1/2014.4/2014 chemo x6 only tolerated 3. (Seizures) repeat fibula free flap 1/2016