The trach needs daily care. If they arent doing it then speak up and advocate for yourself!!!

Can you talk?

Do you have anyone who comes and stays with you? a friend or relative?

Sounds like you need to get someone there to help you get the very best care. Always remember and dont let them forget...they work for YOU. If you have to be a squeaky wheel to get proper attention, do it.

Hopefully you wont be there very long. Good luck!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile