Jen,

There's not a thing you are feeling and mentioning that haven't been experienced by each and every one of us through our journey. Remember, as of the day of your diagnosis...you are a SURVIVOR, until they can prove otherwise.

Just like any other grieving process, there are distinct stages you will go through over and over. With the disease comes the great loss of many things you have learned to take for granted. Also with this disease, you will soon look back on this time and realize more than ever how fortunate you have been and are in life.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023