Thanks for the well-wishes. Had appt with RO this past week. We were told that 10 years ago, this situation would have presented a whole different story re: treatment. HPV has changed all that, so to correct my explanation above, HPV obviously is playing a part in decision to zap this thing with radiation. Planning scan (simulation) next week. Paul and Don, to follow on what you said, we had amazingly excellent care at a non-CCC facility for the initial round of treatment (back when it was a slam dunk 80%-90% cure). If it weren't for this unexpected turn of events, there would not now be this need to move to a CCC that has seen many more such cases.
Best to all,
Mary


Mary
Caregiver to husband, 60
Dx Sept '12 SCC BOT T2N2aMo, Stage IV, HPV+
Oct '12 Sub.Gland transfer
Nov-Dec '12 IMRT x 33 + cisplatin x7
March '13 PET/CT: 2 spots on lungs; (BOT & neck lymphs NED)
April '13 Biopsy: 1 = malignant right hilar lymph (met from HNSCC)p16
9/13: 33 rounds IMRT to lungs; carboplatinx7
CT w/contrast 12/30/13: 2 spots left hilar lymph. biopsy confirms SCC
30 rounds IMRT to left lung; treatment ended 5/29/14
Sept 2014--CT clear; December 2014 CT clear