| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Wendy. Im very sorry to read about Jim's and your struggles with oral cancer and all the horrible things that go with it. What a terrible road you both have been on. You will find some comfort here with our members to help give you moral support. We even have a special section for caregivers. That was made for situations like yours where the caregiver can vent and people will understand and offer their suggestions and understanding.
Please remember during all of this to take a couple minutes a day or once a week for yourself. Being a caregiver can be a thankless job full of stress while you try to keep a smile on your face. I have the utmost respect for all of our caregivers. Sometimes the stress of being a caregiver can be alot to bear and they will need some help. Dont be ashamed to go speak to someone professional or to take some anxiety meds to help make this easier to cope with. It happens to the very best caregivers.
As the time draws near have hospice ready to call for assistance. From what I have read from other members, it has made things so much easier for the patient. They will ensure the patients comfort while maintaining their dignity.
Again, I am very sorry to read about Jim's situation. Hope you will stick around and get to know our wonderful caring members. I know we can help.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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Just joined, my husband is not doing well
| jimandwendy | 10-13-2012 03:23 AM |
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| Cheryld | 10-13-2012 04:46 AM |
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| Pandora99 | 10-13-2012 05:41 AM |
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| Anne-Marie | 10-13-2012 10:34 AM |
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| ChristineB | 10-13-2012 11:40 AM |
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| jimandwendy | 10-13-2012 01:28 PM |
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| jimandwendy | 10-13-2012 01:30 PM |
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| Charm2017 | 10-13-2012 02:37 PM |
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| Ina | 10-13-2012 02:32 PM |
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| StayinPositiveAng | 10-13-2012 03:37 PM |
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| Ina | 10-13-2012 04:35 PM |
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| jimandwendy | 10-13-2012 04:57 PM |
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| Ina | 10-13-2012 05:13 PM |
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| Lynne B | 10-13-2012 11:22 PM |
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| KP5 | 10-14-2012 12:12 AM |
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| jimandwendy | 10-14-2012 02:28 AM |
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| KP5 | 10-14-2012 02:52 AM |
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| itsoktoday | 10-14-2012 03:33 AM |
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| Anne-Marie | 10-14-2012 08:59 AM |
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| jimandwendy | 10-15-2012 10:15 PM |
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| davidcpa | 10-16-2012 12:37 AM |
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| KP5 | 10-16-2012 02:45 AM |
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| jimandwendy | 10-18-2012 11:50 PM |
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| KP5 | 10-19-2012 01:50 AM |
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| David2 | 10-19-2012 04:05 PM |
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| jimandwendy | 10-23-2012 01:18 AM |
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| Cheryld | 10-23-2012 04:12 AM |
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| KP5 | 10-23-2012 11:18 AM |
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| Cheryld | 10-23-2012 11:50 AM |
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| davidcpa | 10-23-2012 12:54 PM |
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| jimandwendy | 10-26-2012 02:44 AM |
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| kenswife | 10-26-2012 03:38 AM |
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| Pandora99 | 10-26-2012 04:08 AM |
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| davidcpa | 10-26-2012 12:45 PM |
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| Shelley K | 10-26-2012 03:45 PM |
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| EricS | 10-26-2012 05:02 PM |
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| Kris | 10-26-2012 05:11 PM |
Re: Just joined, my husband is not doing well
| KP5 | 10-26-2012 11:50 PM |
Re: Just joined, my husband is not doing well
| Anne-Marie | 10-27-2012 03:22 AM | |
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