 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Bloop. it sounds as if you and your Drs took this too casually. It's time to fight this stuff by being very serious as it should have been from day one. I have youin my prayers and am sending you a couple of my angels to keep you alert to what is going on. Good luck and remember this is life or death. If need be, change ENTs. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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