Jojo

I can understand your frustration at trying to move food around in your mouth to swallow it. It can be very upsetting. I have had about 70% of my whole tongue removed and the tongue flap attached and permanently stuck down to become the floor of my mouth.

There are not alot of active posters on the board at the moment who have actually had the same procedure. I have had nearly all of my lower teeth removed due to another surgery so being unable to chew makes it difficult.

I have lots of vegetable and other soups and mushy things. Also mashed vegetables, potato with gravy and things like peaches and cream, pancakes are okay with syrup and icecream, chocolate mouse and custard.

If you start with milkshakes or soups and then slowly but surely you will hopefully move on to the mashed vegetables and so on.

As I said, I know it is soo frustrating, and I miss eating a normal meal more than I can ever express. From my experience, it takes time to go from one step to the next. Just a little step at a time.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery