Sone,
they can increase your Fentanyl, but only 25mcg at a time. Keep letting them know that your pain threshold is still too high. Give the current dose time to work (24 hours) if they upped your Fentanyl. They can also increase your breakthrough meds in the meantime. It's a balancing act between the breakthrough meds and the long term meds so always let the pain managment team your dose rates, especially your breakthrough pain meds. Some doctors really need to be pushed on this.

A week off shouldn't make a difference. Some us us had a week off to recoup and others because of machine breakdowns. Essentially they have to give you the radiation, roughly all at the same time, for it to be most effective. This is the reason your RO was upset (which is a good thing because that means you have a strong chance for surviving this).

If you are using a saline rinse you want to stop. Even the smallest amount of salt can burn like crazy. The acidity in fruit can also burn. Do you have a PEG?

I am SO releived that you restarted treatment! Please keep us informed.

Last edited by Gary; 06-29-2009 11:08 AM.

Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)