Sone,
Your odds of survival are very poor if you do not complete treatment. I urge you to resume immediately! You can do this. It's miserable - it's no walk in the park but it beats death and leaving your kids without a mother.

You won't get any replies from people who stopped treatment - they're all dead.

Your pain management crieria is not acceptable, it is a basic patient right to have pain managed and your MO should be the PCP for this - not your RO. You can have a LOT more Fentanyl than you are getting (up to 500 mcg (but we have never seen anyone here need that much Fentanyl). Remember that it takes 24 hours for a patch or an increase in patch strength to reach a therpaeutic level, so you won't see an immediate change. Once the correct level is found, the residual level will tide you over while the patches are replaced every 72 hrs (some physicians replace them every 48 hrs). Please follow your doctors instructions explicitly on dose rates. Read carefully all of the instructions that come with the patch - they can be very dangerous if not used exactly as prescribed. If you have small children or animals, be careful to follow the disposal directions.

"Swish & Spit" topical pain relief and stronger breakthrough meds (like Morphine - which is the fastest acting) should give you immediate relief.

Your pain is supposed to managed to a "3" on the pain scale, worst case. Demand better pain management and describe your pain to them using the number system that they use.


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)