WZ -

Just read your post. Always nice to meet another "long term" survivor!

Curious - Have you had an ENT look at why your swallowing and speech has deteriorated (relatively) recently since you are so far out from your last treatment?

I agree that the liquid we can get down is ABSOLUTELY the only thing that provides any variety......but unfortunately, in my case its not enough to sustain on its own. Glad to hear that you can still manage some soft foods.

The PEG / pump are a pain to deal with, but it is the best way I'm aware of to consistently maintain control over caloric intake.

Good Luck with things and always keep your doctors notified of any changes.


1997 SCC Tumor on tongue - Partial Gloss
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Gloss
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-gloss
Free Flap reconstr from thigh
PEG Tube
Radiation
Permanent Issues with speech and swallowing
2018 - Bleeding throat / mouth
2019 - Bleeding throat / mouth
2019 - 3rd diag Cancer SCC Base of mouth / jawbone
2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue