Wow, such harsh words. I was wanting hope and support here, but words such as these just crushed it. Saying I won't find anyone out there who stopped because they are all dead, and just deal with it, is heartless. When someone is at their pain limit, asking them to take more is torture. I didn't respond to the Fentanyl at all, and I'm allergic to morphine. I have all the other stuff, "swish and swallow", caphosol, salt/baking soda rinse, viscous lidocaine, humidifier, etc. NOTHING lessened the burning pain.

Of course I understand the gravity of the situation. I anguish over this daily, feeling guilty because I do not want my children to grow up without their Mom. The RO words that I'm increasing my chances of recurrence with a break in treatment haunt me every hour of every day. I'm looking for someone who maybe had the same experience as me and lived to share it. Is there ANYONE out there who broke their treatments?