Sone, welcome to OCF. I completely understand your reasons for quitting radiation. I had felt just like you did while I was going thru it. Radiation can be so difficult. The mouth sores are terrible. I wanted to quit and even told my son and the nurses I was going to stop. The nurses along with my nutritionist, rad doctor and my son convinced me to finish. If I had quit, I dont think I would be here right now.

Have you been given magic mouthwash? That can help tremendously to ease your sore mouth. Also rinsing with baking soda/water/salt mixture helps too. If the salt bothers your mouth, omit or cut it back.

I beg you to continue. Please think of the bigger picture and fast forward yoruself to Thanksgiving. That is what helped me get thru. I made goals by the holidays. I started rad and chemo in Aug and my goal was to have Thanksgiving dinner with my family. Since you have children, maybe celebrating Halloween or taking them to the pumpkin patch and a hay ride would be a nice thought to help push thru this. Since you are a mother, we know you are not selfish. Yet this decision is not fair to your children.


Please go back to radiation immediately. This is something to hit hard once and be done with it so you can move on with your life. Your children need you to be well. If not for yourself, do this for your family.

The survivors of this board and their caregivers all know exactly what you are going thru. Ive been there too and it really can be done. I spent many days in the hospital due to having a difficult time. I know full well how bad this can be. Please reconsider your options.

Best of luck with everything you decide.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile