Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | It's my turn to chime in here.. Why would ny of us feel funny ging out in public?? We are alive and kicking. THey can look at me all they want and it it is a stare or I think it is. I am going to walk over to them and let them know what I have been thru and am still going thru. We have done nothing to be ashamed of except gotten Oral Cancer. That is just part of lifes happenings and thta maybe they will look like this a few weeks or montrhs from now. I'm proud to be able to still run my mouth and if they don't want to listen, they can turn and walk away. Be Proud and not ashamed. If someone looks don their nose at you, it has to be becus their nose is too damn long to see the end of it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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