 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Eric, This site is seeing more and more cases of people who post that they are non tobacco users, casual drinkers and negative for HPV. Their Primaries are also in areas of the mouth that researchers say HPV+ SCC doesn't typically start so something is eluding them. Perhaps a strain of HPV not currently being screened for or even found for that matter. Perhaps another virus. Perhaps ANYTHING or a combination of ANYTHINGS. Just like our Universe, I can't grasp this.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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