 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | David:
Your fears and unspoken words are something I think most of us have. Just try taking it day by day. Maybe go back and read some of your old posts so you can see how far you have come. We are all terrified of a recurrance. Ive had one and am living proof that it can be overcome. Ive also just had all my teeth removed yesterday due to the after effects of radiation. I sometimes feel badly like what you explained. Its a horrible feeling to feel alone and scared of this new life and all the changes that come with it. One thing to remember is that you are seeing doctors who are looking for cancer, if it would come back it would be found very quickly.
Celebrate your milestones. Your 1 year post tx is coming up very soon. Even if you can eat something new, take it as an improvement. Eating will take a long time to return, but it will get better. The support from OCF is what helps us all pull together and move on. Please check in from time to time. It will help you to feel better.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
