 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ruby:
Sorry you are going thru such a difficult time. Ive been thinking about you and wondering how you were making out. Oral cancer's treatment can be pretty rough. Keep asking for help, dont let your request go unanswered. If you dont speak up, nobody will know what you are going thru. You must be your own advocate.
The peg tube needs some training to be able to use it effectively. You are flushing it everyday, right? Keep it clean and dry so you dont get an infection. Do you have prescription formula yet?
Its next to impossible to do this without any help, let alone to care for someone else. Please keep posting and ask questions, we can help you even if it is over the computer. Also, try to start your own post so people will answer your questions and give you their full attention.
Best of luck with everything that you have going on.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
