Angel:
There is some excellent advice here. Most of all you, are your best advocate. Remember, squeaky wheel gets the grease! Don't be afraid to ask as many questions as you feel necassary.
Support groups are a fantastic resource as well. Here in Phoenix, I am lucky to have SPOHNC. Support People with Oral Head and Neck Cancer. A wonderful organization that meets every third Thirsday of the month. The facilitors are RN's who are survivors of oral cancer. One of them at 7 years!
Another resource is a new book titled "Meeting The Challenges of Oral and Head and Neck Cancer a Surviors Guide" by Nancy Leupold and James Sciubba. It is an incredible book discussing everything from issues with Chemo and Radiation to insurance issues, swallowing disorders and social securtiy disability.
My thoughts and prayers go out to you Angel. God Bless you and may you be victorious in your fight against this terrible disease.