Margaret in ma, Where would you find a social worker or patient advocate? I have have a phone number for the cancer navigators here an I will try them again. First off I couldn't even get them on the phone as they would say the person I needed to talk to had gone for the day, and that was every time I called, until I asked them for their bosses name and who actually ran the place and then the person they said had left for the day again conviently got on the phone and spoke with me. It was a short conversation and she was pissed, but I don't think I should have to go to the extream and be rude to be able to get information. I want to cry sometimes when I have to push someone to get answers. I normally just clam up and give up. At the cancer navigators I called 5 times before I had to get rude with them to get someone on the phone so I could find out exactly what they did there. Now I am sure that no one likes me there and I don't even want to call them back now for help.


SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.