 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | My RO's nurse kept telling me that my dry mouth would go away in 4 to 5 weeks post Tx and my taste would return as well in that time frame. When it didn't she would say things to me like " you poor baby, you are having such a rough time." So I naturally thought that I was not recovering as well as most and that something may be wrong with me. Then I was referred to this site and found out that not only was I normal, I may have been recovering ahead of the curve!! In 2 weeks time posting on this site I learned soooo much that I went back to my RO and told him what damage his nurse was doing by filling his patients' heads with false hopes. Then the 3 of us had a nice sit down.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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