Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | I found where the GNC store is at and tomorrow will head over there to look for the Carnation Inst. Breakfast VHC, the ScandiShake and the AnyWHey powder. I'm going to bring my son (Paul) my bathroom scale so i can see how much he's lost since he's seen the doctor. When I try to get him to drink more liquid or soup, he says he has to wait between the waves of nausea and pain to subside inside his mouth. He's not doing any mouth exercises because he says he's waiting for the sores to heal. I think the doctor also talked to him about trismus so I know he's aware of how important it is. I'm going to talk to him again about the PEG tube. Thanks for the really helpful reminders and suggestions. It helps to know from those who've been there, that there are ways to survive all these symptoms and move on to recovery. Just knowing that you all care about my son really helps me to keep going too.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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