Lily,
I hope all is ok with Scott and you.
I completely understand your anger and fears.
When my Mom had her peg tube placed, I was scared to death but also happy that I could help assure she recieved the nutrition she would need to fight.

We used the gravity style and boost high protein per doctors orders. At one point, her tube came out and I freaked cause I knew this was the only way she could "eat". It was immediatly replaced. I found that forcing the boost through (plunging/syringe) wasn't good for HER. it was too much too quick. At one point, we were putting in 2 cans 4x a day to get her weight built up.

Mom also held the right side of her head all the time due to the pain being so great. I was constantly insisting on getting her pain managed.

As Danny Boy pointed out, depression (and nerves) also can come into play on all this too, for BOTH of you. So PLEASE take good care of yourself as well.

This is a very harsh diesease and treatment.

My Mother and I always would start and end the day with a Kiss and an "I Love You" for we did not know what the next day would bring.

Hang in there and take care!
dee