Lily,

I know Kim had difficulty with her peg tube at first and then later throughout. At one point, we were giving her meds through the peg tube and suddenly in the middle of the day, the tube clogged or something and we weren't able to put anything through the tube. We ended up at the hospital yet again, and they had to reinsert her tube since it was pushing against her stomach which caused the problems. Then later, it began leaking anytime we would feed her. I think sometimes, there can be difficulties with the peg tube, which I'm hoping are the cause of your husband's nausea. Oh, and Kim would get nauseated if we inserted anything too fast through the tube, so literally we had to spend over and hour feeding her because everything had to be done by syringe (sp?) and slowly.

Have you found out anything about the blisters on Scott's lip? Maybe they are a reaction to the meds. Are they painful for him? I would ask the doctor if there is anything that you can swab them with.

I hope your appointment goes well with your new doctors. I will keep you both in my prayers.

Angie