Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Even with the morphine, he's still on pain management lite. Most of us were either on Duragesic(AKA Fentanyl) time release patches or Oxycontin for "long term" relief and morphine for "short term".
Being in pain will not enhance his experience nor facilitate faster healing. It can very well hinder his recovery.
He needs a "swish & spit" topical like "pink magic" also for the burns so he can eat.
I did it without a PEG but needed a lot of very careful pain management and still I suffered a lot and lost over 60 lbs. At the rate he is going he is going to have to have a PEG installed inevitably.
He has to get past the anger part and into acceptance and follow his medical professionals advice. Once you're on the rollar coaster you can't get off. This is going to get much worse before he turns the corner. Brace yourself.
When talking to him always use "I" statements and never use "you", "would", "should" or "could". He should be given options and the right to choose. Anger and pain, apparently, are the only things he has control over right now.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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