Today is treatment nine and we have just completely given up on robin being able to eat any more.The weekend was a night mare as the realisation set into his brain that everything he had been warned about was happening and it is not pleasant.Robin is having terrible trouble with nasal mucous congestion in the morning and spends 10 minutes blowing his nose. His mouth is completely gummed up and the radiologist gave him difflam yesterday which he finds a bit sharp but seems to be helping.He was told to discontinue all the biotene products i had got him which i thought a bit odd as they are for dry mouth not painful burnt mouth or am i wrong?He had bloods done yesterday and today we see the oncologist and the dietician (he has lost about 8 lbs this week )the taste problem you have all spoken about doesnt seem to have kicked in yet and he is still enjoying tea and beer. The neuralgia has disappeared altogether which is brilliant ,but he just wont cut back on the work!!!still,every day is a bonus so no complaining ,as we in the uk say onwards and upwards lol.Many thanks for the private messages i have received i appreciate them more than you can possibly know.
love


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.