Well as i mentioned earlier that we would,Robin and i sat and had our heart to heart about yesterdays visit.The worst problem is that he took an instant dislike to the oncology registrar that we saw who wasnt a doctor we had had contact with before.Rob likes his comfort zones and familiar faces are one of those.On occasions his dislikes and objections are unfounded but it is best to let him rant ,and then move on.I tried pointing out to him that this man sees hundreds of people a week going through radiotherapy ,and he knows the protocol like the back of his hand.He doesnt need to know Rob personally to know what is the best course of treatment.I tried to put it to him that he has two options.He can continue to work at his present level,not take the morphine, and suffer the pain as long as he can .Or he can take the morphine get a reasonable maintence level of pain relief and work slightly less.Doctor Bloomfield also said if he gets maintenance and control of his pain he may be able to try eating again.So he took the morphine twice yesterday and wasnt impressed.It gave him a headache ,and made him feel slow.But i have explained he will have to get used to it gradually,so.... so far so good.He is happily drinking the build up and fortisip but he is really mourning the fact that he cant eat.He said last night he enjoys his food ,and he misses it.So the regime is Morphine 10mg every 4 hours(can be every two hours),Paracetamol every 4 hours and Diclofenic three times a day.Asprin gargles three times a day,Difflam every 3 hours,Fortisip three times a day and Carnation Build up added in as well.On top of all this he has biotene products to use.His weight has dropped from 90- 85 kilos in a week wich i think is about 9 or 10 lbs so we are seeing the dietician again on Friday.Dr Bloomfield has told us that if we dont get this regime instigated he will be seriously ill and i think part of the problem for Robin is the feeling that it is all slipping out of his control.Still we will soldier on and it really is one day at a time now.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.