 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny G,
Funny, I just got back from stuffing the sushi down for the past 2 hours. The first food I ate was sushi and with a little extra tea or water, it goes down just great! I went to Japan in March and I stuffed myself many times a day. When we landed there it was like my throat started working again and everything tasted great. I even ate a traditional Japanese breakfast and a western breakfast one right after the other at the hotel every morning. Actually, probably 80% of my diet is Japanese, probably got it from my Japanese mother. She saw both bombs from about 80 miles away as a child and used to talk about it a lot and how hard it was to find vegetables for many months. She had cancer first around 18 and died from ovarian cancer. I think there is some connection to the bomb.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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