 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | larryb,
Thank you for the story and the reality check. The moral of the story is listen to everybody, try what you think they are telling you but do what feels comfortable. Got it!
My dental surgeon didn't mention flouride anything, my wife works for a dentist that gave me flouride toothpaste and told me to put no more than a pea sized amount on and brush for 2 minutes. I then sleep with the upper or lower occlusal guard because I have been grinding my teeth all night from my jaw muscle being so tight after radiation. I go through periods of teeth hurting and being sensitive to no problem. I use Sensodyne toothpaste, too. It is funny how we adapt to whatever it takes.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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