We saw a nutritionist just one time and that was the day after Dan has his PEG tube put in. I had to find out from other sources about different nutrients and request from the nutritionist changes to be made. There hasn't been much help in that way. Fortunately, from another friend that Dan used to work with is how we found out about PEG tube nutrients with many more calories per can...and this has been covered by insurance...when the BoostPlus that the nutritionist first prescribed was not...go figure. Ask around and ask them many questions...it's how we got more things covered...not because they told us! Before radiation he was told to go to a dentist to check his teeth...no one they suggested or provided. We had to pay $400 for flouride trays the dentist said he needed, and he hasn't even been able to use them...they have gagged him bad everytime he tried. Another waste of money.
Hope this helps!
Debbie

Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.