Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | I stand corrected!
I was basing my statement on only my own experience (in which the actual cancer had been already removed by surgery prior to radiation) and no concurrent chemo.
I certainly got the impression from the nurses that I was the one controlling my weight, and it would be by the calories I poured down the tube (presuming I retained them), but perhaps they screen out the folks whose circumstances wouldn't allow them to do that as not being candidates for the Amifostine.
In my case, when I followed the dietician's instructions to a T, I retained my weight and when I later cut somewhat back on the number of bottles/calories, I slowly lost weight.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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