Mandi,

You have experience the roughest part of being a caregiver. When someone you love doesn't do what you think or expect them to logically or rationally do, it is so difficult. For example, my mother had an ileostomy. Before her surgery she made my brother promist to not let them put the "bag" on her. With her cancer spreading so much through her bowels, they had to do it or she would literally explode within hours and die. When she woke up in recovery the first thing she did was look under the covers and yell at my brother. He was crushed and it was very hard for him to even be around her the rest of her life. Although she lived for another 9 months, she never once changed the bag. I tried so hard to teach her and I swore I would never do such a private thing that even turned my stomach at times. Yet, when it needed done, I just did it. I can imagine what you feel like. Everyone accepts things and processes life's events on their own time schedule. Be patient and maybe encourage him to visit with a professional that deals with this type of issue every day.

Hang in there and remember how fortunate your husband is to have some that cares so much by his side...through thick and thin...forever and always!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023