 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sabrina,
Amen and AMEN! After having been on the caregiver and patient side of things it really is a relief when others ask things that you experienced. Like, when you mentioned fastened down by the mask and wanting to scream...time going so slow. I was sitting on the edge of my chair saying...YES...IT WAS JUST LIKE THAT!!
I can't imagine going through all of this without each of you (us). Worse yet, I can not imagine going through this totally alone.
Thank you for sharing!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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