Karen,

I feel my mom's pain everyday and there is still not 1 hour in the day that I do not think about this horrible disease. Maybe for me it is because everything is still so new. My life has been out of sorts for a whole year now. I have not felt like I can take a real breath and relax since last April 03. I went through a child being born and now she will be 8 months old next week and I have not been able to enjoy her like I should because I cannot get this dreaded disease out of my head. I want Keeley to grow up to know what and incredible person her gramma is!
I keep thinking maybe its because I get on this website and when I am on here I am constantly reminded that this disease does take lives young ones, old ones, many incredible people who do not desearve to die in this horrible suffering manner.
I guess what I am trying to say is that people handle things differently some think that maybe if we don't talk about it that it does not exist. My husband's standard answer when I say that I am worried about my mom is that she's gonna be fine wife!

Ed, You are an such a great person. My heart too is heavy today. Lots of disturbing news on the site lately.

Love and hugs to you all,
Dani