Dad skipped two rad treatments this week. Pain was too much. His radiation oncologist gave him new medications to try and he has been able to rest, eat, drink and talk. Boy, I hope we make it through this! He's lost 20# or so since his diagnosis. I wish we had gotten the same message about chemo and rads from both sets of doctors. One said do both and one said do radiation for sure, but chemo is probably overkill. Makes it hard to weigh risks and benefits when they don't agree.

Anyone here make it through rads without a feeding tube? What did you eat? Seems like everything but eggs, plain yogurt and sardines hurts dad's mouth or gives him reflux.

Last edited by Vicky1; 08-07-2018 08:57 PM.

Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC
Mandibulectomy and free-flap reconstruction 5/30/18
Diagnosis changed to SSC.
Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18
Decided not to do any more Cisplatin after the first one.
Finished treatment on 8/31/18.
3.19 Abscess & Recurrence wide mouth resection
4.16.19 Scapular Flap Reconstruction surgery
9.6.19 Clear CT!
8.6.20 Clear CT!