Does anyone else here have Verrucous carcinoma? I am reading online and a lot of medical articles are saying that they treat most patients with surgery only, and that most patients do not have recurrence. One article says one patient of 22 got radiation after surgery and he had a secondary cancer start in his tongue 6 months after radiation. Maybe I'm just looking for a way out of this chemo and radiation, but I wonder if they're treating this like other kinds of SCC and shouldn't.


Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC
Mandibulectomy and free-flap reconstruction 5/30/18
Diagnosis changed to SSC.
Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18
Decided not to do any more Cisplatin after the first one.
Finished treatment on 8/31/18.
3.19 Abscess & Recurrence wide mouth resection
4.16.19 Scapular Flap Reconstruction surgery
9.6.19 Clear CT!
8.6.20 Clear CT!