Thanks, Christine.
I checked it all out but didn't really see anything that describes his particular situation.
Also, regarding cold laser treatments, it is becoming more common now and used by chiropractors, physical therapists, sports trainers, and veterinarians. My observation is that most MDs in Tampa are very unaware of this new technology. It's been used in eastern Europe for decades, and Health Canada has also approved it for various uses, as has the FDA. It was highlighted in Chapter 4 of a 2015 bestseller by Norman Doidge called "The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity". This book was really about the use of cold laser for diseases and disorders of the brain, but it talks about it's more common uses as well.
This feels like 10 years ago when HBOT was a new therapy for oral cancer survivors. My husband was prescribed 40 dives, and I posted about it on here, and very few had heard of it at that time.
I will add that our particular use of cold laser was our own personal experiment (with a doctor's approval), and for us, it yielded good results. My husband no longer has trouble opening his mouth and can eat a fairly normal diet, it softened all his hardened scar tissue on the neck so that he has better neck ROM and little cramping, and it greatly softened up the soft tissue of the lower jaw (which was really hard when we started). The problems he had with jaw swelling have gone away. As I said, he went from having 9 out of 12 symptoms of ORN to having 3 out of 12. The cold laser did not resolve the fistula, and it did not fix the issue on the inside of the mouth with the exposed bone. But, his pain has also been greatly reduced. So overall, I would definitely call it a success for us - just not a complete success.
I believe we have actually been working with some top physicians in the field of osteoradionecrosis anyway. We went to Dr. Robert Marx's clinic at University of Miami, and my husband almost underwent their recommended jaw reconstruction surgery 4 years ago, but was advised against it by Moffitt CC, Tampa's own comprehensive cancer center and #18 overall in cancer center rankings. Next, we are headed to U.F. Shands Oral Clinic.
Anyway, it is always a puzzle to get answers and know where to turn with these issues.
Thanks for the feedback!