Ive seen several members over the years who have been treated for ORN without disfigurement. You mentioned your husband had HBO 18 months ago. Since its been many months after his HBO, this is something that should be redone. Your husband was given rads for OC so unfortunately anyone who was treated with rads needs HBO before ORN surgery. I know its a pain to go thru HBO but its necessary to help prevent bigger issues later.

Depending on how involved the surgery is will determine how long the surgery will be. If your husband is able to eat, he should begin having all his favorites now. His eating will be compromised for at least a week or 2, hopefully not more than a month. After surgery a diet high in protein will help him to recover. Check with the doc if its ok to use high protein whey powder added to his liquids. He probably wont be allowed to use straws for a few weeks.

He probably will have drains after surgery, maybe a skin graft too. Swelling could be significant. Dont fret if he stays swollen for a while after the surgery. It can take months for this to dissipate. With this kind of intricate surgery, it can take him a full year for his body to completely recover. That doesnt mean he will be in pain or suffering, just that it takes a while. Dont be surprised if he isnt put back on antibiotics after the surgery. Since your husband had rads, his ability to heel is probably compromised making it take much longer. HBO will also help him to heel from the surgery.

Ask the doc if he will need a trach. If so tell them to use specifically a possey muir valve so he can talk if he is able to. Plan to spend considerable time at the hospital with your husband. If you have anyone who could help out so you can take a break, it would be a good idea to line a few helpers up. If they would each take a few hours then it will make this so much easier on you. Having someone there with him is especially necessary if he is unable to speak. Too often the medical team will ask questions and expect a reply but is he cant talk he needs someone there to be his voice.

Im sure theres lots more Im missing. Wishing you both all the very best with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile