Yes, this subject has been discussed on many threads. The complications your husband has do not always affect all ORN patients. If you use the search feature in the upper right corner and put in osteoradionecrosis, you will soon be reading page after page of info. There is also tons of info on the main OCF website (direct link to osteoradionecrosis below).

Main OCF pages... Osteoradionecrosis

Im sorry but I have not heard about cold laser treatments. When I did a quick internet check, it comes up on Quackwatch. From what I saw this is considered experimental. Looks to me like there is still considerable testing to be done on this treatment before it can be determined helpful for the masses.

Your husbands case sounds like it is a complicated one. Hopefully you will find some top physicians who are well experienced with treating these types of things. Usually patients with complicated cases like your husband fare best at the country's top CCCs like MD Anderson, Sloan Kettering, etc.

Wishing you both all the very best with this.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile