Connie,
If you check my threads you will find several related to my frustration with dealing with ORN. I think that we are headed down the same path as you and your husband.

My husband was diagnosed with early stage ORN 5 years post rad/chemo; one year post dental extraction with HBOT. We travel 3 hrs. to see an oral surgeon on a Head & Neck cancer team at Beth Israel/Mt. Sinai in NYC. Another appt is scheduled at end of this month due to increasing symptoms. I will let you know if I find out anything new and will check for your future posts.

Do you have a signature line you can add? It helps to see entire history.
Lottie