lwilley, I had ORN which was managed conservatively for several years with HBO, debridement, and ABTs. The ORN continued its progression and I opted for a partial mandibulectomy, which was done by my Oral Surgeon. I decided against reconstructive surgery and do have facial disfigurement. My recovery was easy and I have had no problems or ORN showing up in my panoramic X-rays or CT scans since the surgery. Take a look at my posts re my history and ORN. Because each ORN case is unique I cannot address your husband's prognosis or how extensive a surgery to arrest his ORN would be. A second opinion is always advisable.

I used a Fentanyl patch for the ORN pain and found it quite helpful. I did up the dosage several times during the course of a year. No pain since my surgery and my husband still loves my smile.

All the best to you and your husband.



Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.